Develop a large-scale database that will transcend existing consortiums and databases and will house molecular, genetic, clinical and environmental data. Further, the database will be built for high-volume, high-velocity data processing taking advantage of the latest technologies while allowing for future growth and advancements. The initial primary focus will be brain tumors, starting with data collection in the pediatric population and then expanding into adults. Update: We are partnered with the Children's Brain Tumor Network (CBTN), formerly Children's Brain Tumor Tissue Consortium (CBTTC), on the Cavatica platform.
Reward qualified researchers and institutions who share data with the database by giving them free access to the database, leveraging existing grant funding, and creating new grants through fundraising efforts. Update: Access to Cavatica is free. We are currently advocating for other foundations to consider data sharing in their funding models, and we sponsor a data sharing award, The Research Symbiont.
Provide opportunities for researchers to work with each other and with other experts outside of their field of expertise to expand the horizons of research by pushing their experiences outside the box. Update: Cavatica has a shared space for collaboration. Additionally, we have an outreach effort to encourage more academic use of the platform.
Provide a system for tracking patients from one clinical study and/or hospital to the next and give researchers better long-term data on deaths and survivors.