When it comes to a patient and their family’s journey with cancer, time is a precious, fleeting resource. This was what we faced when our son, David, was diagnosed with Glioblastoma Multiforme in September 2010.
David was just 16 years old when he was diagnosed with cancer. He was funny, quirky, intelligent, kind, and adored by all who encountered him throughout his life. David dreamed of becoming a chef, the kind of person that brings people together to share each other’s company. He not only had the honor of meeting internationally renowned Chef Gordon Ramsay but also the privilege of calling Spanish Chef, José Andrés, his friend.
Through CAVATICA, real-time feedback is shared, allowing researchers to modify the trials as we move forward instead of waiting for the results. Our platform provides researchers with the ability to find out what works and fails, faster. Our initiative also connects patients and their families with the resources they need to help them get through the journey with as much support as possible. Get familiar with CAVATICA and our plan of action for its usage here. Learn more about our resources for patients here.
Meet Our Executive Board
Through their unique strengths and backgrounds, our Executive Board pushes the Dragon Master Initiative toward our goal of getting closer to a cure for cancer.
Meet Our Childhood Cancer Advisory Board
Through their unique strengths and backgrounds, our Childhood Cancer Advisory Board pushes the Dragon Master Initiative toward our goal of getting closer to a cure for cancer.
Katherine E. Warren
When it became obvious that we would need our own nonprofit to have the greatest impact, we started brainstorming names. We new the initiative would be larger that the other efforts we had encountered, and they already had some pretty impressive, global sounding names. We also had the idea that the kind of data we wanted to collect could go beyond typical research paradigms, and might initially be kind of hard to define. So we started thinking about terms that were more symbolic than literal. Cancer is often referred to as a beast, and our David had always loved dragons, so using a dragon as part of the imagery felt like a good fit. However, David loved dragons, so we wanted to have a name that would honor that love. We also thought that control of disease is the first step toward curing, so the term “master” seemed like a natural way to express that control.
The CAVATICA platform is a free, open-access research tool that enables doctors, scientists, and researchers to easily share, search, and analyze large collections of patient data. Join the Children’s Brain Tumor Network (CBTN), the Children’s Hospital of Philadelphia, and a network of other hospitals and research institutions that have committed to coming together to revolutionize cancer research. We empower you to share your medical research data with fellow researchers and medical professionals to allow you to modify your trials in real time. Will you join our movement to revolutionize cancer research? Reach out to Amanda Haddock to get started.
Medical professionals and researchers are forced to follow. By providing a free, open-access research tool that doctors and scientists can utilize simultaneously, time is cut dramatically in these processes. Widespread use of a platform like CAVATICA means that doctors will have access to more recent updates and information from the latest studies about pediatric brain cancer (and potentially many other cancer types.)
If you are looking for biospecimens, you can apply for access to those here. We are always seeking researchers to share their medical data through the CAVATICA platform. Through this platform, we empower you to share your medical research data with fellow researchers and medical professionals to allow you to modify your trials in real time. If you need help learning how to utilize your tools on this platform, please email Amanda Haddock. If you are looking for data on children with structural birth defects, you can access that data here.
The Dragon Master Initiative is proud to serve cancer patients and their families by providing financial assistance, information, and resources, as well as connecting with you. No matter where you are in your diagnosis or treatment process, we want to walk through this journey with you. Click here to learn more about the programs we provide, as well as other resources to help give you confidence in your treatment decisions. Questions? Reach out to us at firstname.lastname@example.org or through our Facebook page.